本集介紹
《3CM》(2019) 是其中一部在「銀幕·香港」香港Indie電影網上展放映的電影 (詳情：https://www.hkonscreen.org/indie-home）。《3CM》(2019)看似一個微不足道的距離，卻是結節性硬化症病人生死存亡的指標，影響他們能否得到合適的藥物。電影由兩位背景各異的病友媽媽的角度出發，走訪他們爭取生存權利和尊嚴的歷程，從而探討公共政策及社會公義等課題。《3CM》(2019)不只是罕見病病友的故事，也是香港人的故事。
「銀幕·香港 Podcast」在這一集邀請了《3CM》(2019)的導演黃肇邦一起討論了：
1. 為何導演揀選罕見病這個比較特別的題材？拍攝紀錄片的緣起是？
2. 藥物政策、醫療倫理、公共衛生等議題都相對沉重而複雜，亦需要很多資訊才能令到一般觀眾理解，導演又如何平衡不同素材，同時可以牽動觀眾，令人想繼續觀看呢？
3. 拍攝紀錄片就跟人生一樣無法預計，在剪輯過程中，遇到甚麼困難？如何選取、編排素材？
4. 電影把焦點放在照顧者社群和他們爭取權益的歷程上，而不是集中描繪罕見病病友的嚴峻病況，為何會有這樣的安排？
5. 紀錄片中被訪者都十分真誠和信任地講出心聲，導演是如何建立這份關係？
6. 電影其中一個核心訊息是為自己發聲、嘗試帶出改變。我們看到片中被訪者如何發聲，那麼對導演來說，何謂發聲？
7. 電影最後以一個對比鮮明的畫面作結，期望帶出甚麼訊息？
8. 之前在香港本地放映，受疫情所限未必能接觸到很多觀眾，是次網上放映則可以接觸到海外觀眾，導演有甚麼看法？
9. 可以透露一下接下來的電影項目嗎？
3CM (2019) is one of the films featured in the HKOS Indie Film Online Showcase (for more info: https://www.hkonscreen.org/indie-home). Despite its seemingly insignificant distance, 3CM (2019) serves as a crucial marker of life and death for patients with tuberous sclerosis, impacting their ability to access the proper medication. The film takes the perspective of two mothers from diverse backgrounds who embark on a journey to fight for their right to survival and dignity, thereby exploring issues related to public policy and social justice. 3CM (2019) is not only a story of rare disease patients but also a story of the people of Hong Kong.
In this episode, director Wong Siu-pong of 3CM (2019) joins the discussion to explore:
- Why did the director choose the relatively unique topic of rare diseases? What was the inspiration behind making this documentary?
- Issues like drug policies, medical ethics, and public health can be pretty heavy and complex, often requiring much information for the general audience to understand. How did the director balance the different materials to engage the audience and keep them interested?
- Filmmaking, like life, is unpredictable. During the editing process, what challenges did the director face, and how did they select and arrange the materials?
- The film focuses on the caregiver community and their journey to advocate for their rights rather than solely depicting the severe conditions of rare disease patients. What was the reasoning behind this approach?
- The interviewees in the documentary are very candid and trusting in sharing their thoughts. How did the director establish this rapport?
- One of the core messages of the film is about speaking up for oneself and trying to bring about change. We see how the interviewees in the movie do this, but for the director, what does "speaking up" mean?
- The film ends with a stark visual contrast. What message does the director hope to convey with this ending?
- Previously, the film was screened locally in Hong Kong, and due to the pandemic, it may not have reached many viewers. With online screening, it can reach an international audience. What are the director's thoughts on this?
- Could you give us a glimpse of the director's upcoming film projects?
嘉賓主持：阿紗
Guest Host: Ah-Sha
Follow her @ https://www.instagram.com/hk.finger/
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The Hong Kong On Screen Podcast is a podcast about Hong Kong Cinema. The HKOS Podcast is hosted by Hong Kongers. You can follow us on Twitter, Facebook, and Instagram. You can also email us at info@hkonscreen.org.
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